Face-to-Face With Suffering: What Leukemia Taught Me About Pain and Purpose
Battling leukemia for more than three years already, one might think I’d be accustomed to pain. The initial aches that come with the disease, the countless needles, syringes, and catheters over the years, the terrible side effects of chemotherapy, the spinal taps, blood transfusions, and the tough road of undergoing two stem cell transplants—all of it has shaped me. Yet, nothing could have prepared me for the pain I experienced this past week. I’ve found myself face-to-face with a kind of suffering I hadn’t prepared for. It was a kind of suffering that demanded the full attention of my mind, body, and soul.
A Week of Unimaginable Suffering
Currently, I am on day 27 out of 28 of my first cycle of Blinatumomab Immunotherapy. This advanced treatment uses the body’s immune system to target and destroy leukemia cells by linking T-cells to cancer cells. While the treatment has been progressing well, I didn’t anticipate the painful episodes that would follow. Fevers left me trembling, chills wrapped me in an icy grip, and bone-deep pain felt as though it was carving into every part of my body and spirit.
All these symptoms struck suddenly, often in the middle of the night. One night, I woke from a peaceful sleep, sensing that something was wrong. Fatigue weighed heavily on me, like the exhaustion after running a marathon. I asked Mama to check my temperature, and sure enough, I had a fever. Chills overtook me, and my body began to shake uncontrollably. We called the nurse and doctor on duty, who checked on me and gave me paracetamol to help manage the fever and chills.
Mama tried to ease my discomfort by massaging my legs particularly my knees, but the pain only intensified as time went by. It became unbearable. I cried out in agony, waiting for more of the pain medications to take effect. Minutes felt like hours as I groaned and prayed, asking God for mercy. Finally, as the sun rose, the pain began to subside. Relief washed over me, though I was utterly exhausted. This excruciating experience happened three times over the past week.
Finding Purpose in Pain
During those long hours of discomfort, I couldn’t help but ask: What is the purpose of pain? Why must it persist, especially when the fight already feels so long? How long must I suffer and wait, O Lord? These questions became my constant companions as I tried to process the experience.
And as I reflect and search for answers, the popular slogan “no pain, no gain” came to mind. It’s a saying that we often hear from athletes. A saying that I would often say to myself whenever I workout or go for a run. But in the middle of this suffering, it took on a new meaning. Pain, as unbearable as it feels is not meaningless, and serves a purpose — one that may not be fully revealed in this lifetime, but one that I trust is orchestrated by God His glory and my good.
And so let me share to you my realizations of how pain can be gains with the things that happened to me recently:
Pain Exposes Hidden Roots
Whenever I have a fever or experience any painful symptoms, they serve as indicators that something is happening in my body that we can’t see with our eyes. Often, doctors would order a workup—chest X-rays, blood cultures, urinalysis, and more—to uncover the root cause of the pain. These diagnostic tools help identify underlying issues that might otherwise go unnoticed.
You see, pain exposes our vulnerabilities and brings the truth to the surface. Without it, we might overlook important things that need our attention. When pain exposes the root, it forces us to confront the issues within us—fear, anxiety, unresolved emotions, or even misplaced priorities.
In the same way, God allows pain to expose our sin and call us to repentance. In Psalm 32:3-5, David describes the physical and emotional toll his unconfessed sin took on him:
“For when I kept silent, my bones wasted away through my groaning all day long… I acknowledged my sin to you, and I did not cover my iniquity; I said, ‘I will confess my transgressions to the Lord,’ and you forgave the iniquity of my sin.”
God uses pain to bring hidden truths to light, urging us to confront, confess, and repent. Without this necessary step of acknowledging our sinfulness, we cannot fully experience the healing and redemption God offers. It is through the recognition of our brokenness that we are driven to seek His grace.
Romans 3:23-24 reminds us of the truth:
“For all have sinned and fall short of the glory of God, and are justified by His grace as a gift, through the redemption that is in Christ Jesus.”
Just as physical pain drives us to seek medical help, the pain of spiritual conviction drives us to seek the only cure — Jesus. Through pain, our eyes are opened to the things that are unseen. It leads us to focus on what’s most important — the eternal things.
Pain as a Call to Dependence
Often, when life is smooth sailing, we can become self-reliant, forgetting our need for God. What does pain do? It shakes us and awakens us to remember that we must depend on God and others. Pain humbles us and teaches us that we cannot do everything on our own.
Consider the Apostle Paul, who described having a thorn in his flesh—a source of real pain in his life. He pleaded with the Lord three times to remove it. Paul recounted God’s response in 2 Corinthians 12:9: “But he said to me, ‘My grace is sufficient for you, for my power is made perfect in weakness.’ Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.” Pain and suffering teach us to rely on that grace—to trust that even in our weakness, God’s power is enough.
This dependence is not a sign of failure; rather, it is a whisper of invitation to experience God’s sufficiency. It draws us closer to Him, teaching us to surrender control and find rest in His promises.
Pain is still painful—it’s never pleasant. When my discomfort escalated from a slight ache in my knees to excruciating, 10-out-of-10 pain, Mama was the first to come to my rescue. She would immediately rub essential oils on my body, wrap me in thick blankets, massage my legs to try and relieve the pain, and even wipe my tears away. In those moments, I saw how God uses pain to remind us of our need for each other.
Pain humbles us in our relationships and deepens our connections with family and friends. It teaches us how to receive comfort, how to give it, and ultimately how to share in each other’s burdens. As Paul wrote in 2 Corinthians 1:3-7, God’s comfort enables us to comfort others: “Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.”
Through pain, we gain not only strength but also a greater capacity for compassion and love. It calls us to dependence—on God and on one another—and through that dependence, we find the grace to endure and the strength to persevere.
Pain for God’s Glory and My Good
In the darkness of those nights, the song by CityAlight, His Glory and My Good, became an anthem for my soul. The second stanza of the hymn says:
There is hope in every trial
For I can trust the Lord
He will turn my heart towards Him
And help me bear the thorn
So in faith, I follow Jesus
On the road not understood
For I know that He is working
For His glory and my good.
These lyrics reminded me that, even in the pain of this journey, God is working behind the scenes for His glory and my good. Though I may not fully see or understand His purpose now, I can trust in faith that His sovereign hand is keeping me.
One of my favorite stories in the Bible is about Joseph the dreamer, found in Genesis. Betrayed by his brothers, sold as a slave in Egypt, falsely accused, and imprisoned—Joseph endured incredible suffering. Yet, by God’s sovereign hand, he rose to become governor of Egypt, second only to Pharaoh. In this role, he was entrusted with providing food for many nations during a famine, including the very family members who had betrayed him.
What amazes me is Joseph’s response:
“You intended to harm me, but God intended it for good to accomplish what is now being done, the saving of many lives. So then, don’t be afraid. I will provide for you and your children.” (Genesis 50:19-21)
We often focus on the phrase, “You intended to harm me, but God intended it for good.” But when we look closer, the words that follow—“to accomplish what is now being done…”—reveal an even greater truth. God didn’t allow Joseph’s suffering just for his personal growth or benefit. It was also for His divine purpose and glory. Through Joseph’s trials, God saved many lives and demonstrated His faithfulness.
This past week, during my most challenging moments, the doctors explained that my symptoms were side effects of the immunotherapy. The pain could be due to Blinatumomab’s mechanism of action—engaging T-cells to attack leukemia cells. Another possibility was the reduction of leukemia cells in my marrow, allowing normal blood cell production to recover. This recovery process can increase bone marrow activity, leading to discomfort. These symptoms, as unbearable as they felt, were signs of progress—a reminder that healing was at work.
2 Corinthians 4:17 offers comfort, reminding me that pain is not pointless:
“For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison.”
In His sovereign plan, God orchestrates every event in my life, including pain. Many might question how a good God could allow suffering to happen to His faithful children. Pain is pain; suffering is suffering. None of us want it, and we dread it. Yet, what sustains me is the knowledge that it is not meaningless. God is working through every affliction to prepare something glorious beyond what I can imagine.
Wounds That Heal: The Hope in Jesus
This brings me to Jesus, who endured the greatest pain of all. He did not just endured physical agony but the full weight of humanity’s sin. Through His pain and death, God’s ultimate purpose was fulfilled and His glory perfectly revealed. Jesus bore our sins in our behalf so that we may be reconciled to the Father.
Isaiah 53:5 declares: “But He was pierced for our transgressions, He was crushed for our iniquities; the punishment that brought us peace was on Him, and by His wounds we are healed.”
Jesus’ pain is the perfect example that pain is not meaningless — it was redemptive. The Suffering Servant willingly submitted to pain so that we may be healed and made whole. The kind of healing that is most important than our physical healing. The healing of our souls. As I fight and endure my own trials, I can find hope in knowing that my Savior understands pain in the deepest most excruciating form.
His suffering was not without a purpose, and so is mine!
So even in pain, I can say in confidence:
“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day.” (2 Corinthians 4:16)
If my story resonates with you, share this with someone who needs encouragement today.
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Leni
12/24/2024 @ 2:33 PM
Hi Valerie, I am feeling a different kind of pain this month alone. I was retrenched at work and in good faith, I made a blunder that might leave me terminated at work.
As I read your words, it resonated in my heart that I have been putting God aside and putting work first place in my life. I found the pride in my own achievements and hence, lost my dependence on God. There are still ugly truths that pain will continue to expose in the surface aside from my pride, but one thing is sure, this pain is an awakening to my weakening soul and spirit.
Thank you for the encouragement and I am truly blessed by your story. I pray that God will also heal me as I reorient my life to Him and for Him.
I will pray for you and with you as well.
Let’s be strong in the Lord my sister in Christ.
valerierosechan
01/04/2025 @ 6:37 PM
Hi, Leni,
As I read your comment, tears started to well up in my eyes. Knowing that someone is able to relate to my story and my heart is encouraging. Most of all, it gives me joy and purpose to know that I can point readers back to Christ. Thank you for sharing your story, and I will keep you in my prayers as well. 🙏🏼🫶🏼